
dOWFN2 Scribbler, give me a student's record-book!))))
193.105.210.170 (2012-02-12 04:10:49)
reactive lymph node. Have lumps gwnirog on my joints-hands, and many small round lumps gwnirog under my forearms and some on my thighs. Hands are very swollen each morning and hurt alot. My cuticles are overgrown, and the skin around my finger nails peel all the time. My lips peel too. Hard skin growths (not very thick) on knuckles, knees, and on the joints feet/ankles that are darker than my normal skin color.Very dry eyes, being treated with restasis.Extreme fatigue, and dizzy spells, falling alot, dropping things all the time. Vision is somewhat impaired with double vision. CBC normal. Ana direct positive. ENA testing-positive low titer U1RNP antibody-only antibody present. Normal sed rate, normal AST,GOT, and CPK levels.My rheumy says it is just fibro. I read that less than 1% of the healthy population can have a positive U1RNP antibody. I am clearly not healthy.She said at first it was MCTD, then decided because the titer is so low, that it is not MCTD-just fibro. After research, I found that a low titer RNP can mean systemic sclerosis, possible limited sclerodoma. My symptoms seem to match this disease, which in my mind could mean sclerodoma due to the skin presentations. In my research too, I found that genetics can play a role in autoimmune. One research site said that thyroid autoimmune problems in the family could lead to other family members with systemic sclerosis. I am a lot of pain each day which makes life a little difficult.My rheumy had me on Plaquenil, but since she insisted that I just have fibro, I stopped taking the plaquenil. Can't take other fibro type meds, have severe allergic reaction.I just want a definate diagnosis .that's all. She refuses to take any of my symptoms to be something other than fibro. What is your best guess-timate of what I might have?How can I confirm or convince my rheumy this isn't just fibro? She won't do any other biopsies like the nailfold capillary test, or muscle biopsy. I am at a loss .and basically want to give up.Reply
115.181.37.61 (2012-06-02 05:19:45)
elgetoreldro
91.121.179.148 (2008-11-13 20:24:29)